RARE DISEASE DAY

Get detailed information at www.rarediseaseday.org

Rare Disease Day, established in 2008 by EURORDIS (the European Rare Disease Organization), was first observed in Europe in 2008. Each year on the last day of February the world celebrates Rare Disease Day, to promote awareness of rare diseases and to participate in awareness activities that help spread messages of hope both within the rare disease community and to the public. In 2011, over 60 countries participated and the U.S. Senate adopted, by unanimous consent, a resolution designating February 28, 2011, Rare Disease Day across the U.S. This year Rare Disease Day is Wednesday, February 29th, 2012.

Supported by The Foundation for Children with Atypical HUS (co-founders Bill and Cheryl Biermann), our patient organization for this ultra-rare disease, the 'Soaring Voices' project is a global initiative created by Linda Burke, founder of www.atypicalhus.org .

Watch Tricky Britches performance Video | www.youtube.com/aHUSrarediseaseday

Submit your video or slideshow to NORD & Eurordis | http://video.rarediseaseday.org/video-gallery

Rare Disease Patient Communities | www.rarediseasecommunities.org

NORD | www.rarediseases.org

Eurordis | www.eurordis.org

Rare Disease Day graphics | www.rarediseaseday.org/article/download

Our Soaring Voices poster | www.alphamarketing.com/ahus/SoaringVoices_Poster.pdf

MP3 of CD Baby "A Rare One" single | www.cdbaby.com/trickybritches12

Lyrics are available in English, French, and Spanish.

MP3 of CD Baby "A Rare One" Instrumental version | www.cdbaby.com/trickybritches13